Last April, we took Seiden back to see her surgeon. This appointment was one we had been fearing, anticipating, and longing for answers because of a new growth that we noticed had come up on her left side, behind her ear. I noticed it one morning when I was getting her ready for school and immediately called Cody into her room to come see if I was (hopefully) just seeing things. Unfortunately, my mother's intuition and eyes were not deceiving me. Cody confirmed my fears and agreed that there was something there behind her ear. What we both had seen, was a green/blue knot, about half an inch long and raised up just a little bit, behind her right ear. When I took her over to my parent's house that morning, I had them look at it too. And, we all agreed, it was time to call the surgeon and get in as soon as possible. We had no idea what it was, what it could be causing, if there were more that were going to pop up, etc. As soon as the clock turned 8:00 on the morning we found the spot, I was on the phone with her surgeon's office, begging to get in just as soon as he had an opening. Even if that meant going to one of his other offices in the Metroplex, we just wanted in and fast!
Thankfully, our little princess was not acting a bit different. She didn't even notice it. Except, of course, when we were messing with her trying to get a better look at it. And even then, the growth didn't bother her, we were the ones aggravating her! She is such a trooper. I can't say it enough. This little girl continues to amaze me. She has been through so much and goes about it all with such a fighting attitude and the will and strength of someone far beyond her years. I just love her so much and am so thankful God chose Cody and me to be her parents!
So...I got the appointment made for April 9th at 10:00 that morning. My parents went with us for moral support and to help with Seiden while we were all in the room wit Dr. Thomas. They wanted us to be able to focus on him and what all he was telling us and not have to also keep Seiden happy and occupied. Because...let's be real. An 18 month in a doctor's office, a specialist's and surgeon's at that, is a pretty loud and energetic experience!
When we were called back in Dr. Thomas's office, we were getting pretty nervous and anxious. Seiden was, of course, playing with her baby dolls, coloring, telling us all kinds of stories, and completely oblivious to all that we were feeling and what was going on. Dr. Thomas came in the room pretty soon after we were in there and was just enamored with Seiden. He couldn't believe how big she had gotten, how much she was talking, how advanced in her development she was, and just her overall progress. He did confirm that her cheek was pretty swollen, probably due to teething and upper respiratory stuff that was going around. So, that was good news to hear. He then looked at the spot we were concerned about. What he said was music to our ears. He was NOT the least bit worried, concerned, or even surprised about what he saw. Because of her condition, she is likely to get hematomas from time to time in the cysts she still has within her cheek and in her neck. What she had developed, was simply a hematoma which was caused by one of the cysts rupturing. Not to say that couldn't be a scary situation. But, because her cysts are concentrated and the walls of the tissues are so tight, there was no concern. Praise the Lord for more good news. We just continue to see God's miraculous healing in her life and just praise Him everyday for this miracle he has given us.
We sat in Dr. Thomas's office and just visited with him about Seiden, life, summer plans, etc. for a little bit. Then, he asked us if we were ready to start a new phase in Seiden's journey. We knew this day was coming. I just think we were all kinda in shock it was happening so fast! But, he told us that Cook Children's had just gotten a new Radiologist in January that specializes in cases like Seiden's. He was previously at the Children's Hospital of Philadelphia and had great credentials, experience, and success in treating similar situations like what Seiden was born with. Now, if that isn't God working, I don't know what is! Because, up until that appointment, there was really no specialist at Cook Children's that could really help tackle what she has with the best results and the highest safety measures. Dr. Adeka McIntosh was the name Dr. Thomas gave us for our new path in Seiden's journey. Dr. Thomas's office contacted Dr. Mac's office, and together, we all began coming up with a plan to see what we needed to do to help get rid of these tiny cysts that Seiden still had concentrated in her right cheek and spread over sporadically into her left side. Before we had even walked out of the office, Dr. Thomas had already gotten all Seiden's information over to Dr. Mac and we received a call from his office before we were even home from Ft. Worth that day.
After the appointment with Dr. Thomas, we were all in such good spirits and just so relieved and felt so fortunate to have received such good news. Especially when we had thought we could hear something far, far worse. It was still early, not even 11:30 and we had already gotten back to Ft. Worth. Our appointment with Dr. Thomas was in his Hurst office because that was the office that had the first opening! So, since we had the rest of the day, we decided to have some fun and make some memories with the extra time we were given. Plus, we needed to celebrate! So, once we got to Ft. Worth, we ate at our favorite spot, 'Ole South Pancake House! That place NEVER disappoints! Seiden was exhausted when we got there. Actually, she fell asleep in the car before we had gotten to the restaurant. So, I carried her in and she proceeded to sleep on me until right before the food came. We all had an amazing lunch! The day had turned out to be absolutely gorgeous. So, we decided to head to the Ft. Worth Zoo for a fun little family trip before we headed home! The zoo was amazing and Seiden LOVED it and seeing all the animals. By about 2:00, we had seen pretty much everything and decided we should make our way back home. But, we had to stop at Toys 'R Us as one last stop before we officially hit the road! Opa loves to buy Seiden treats and special things. So, he had a hay day in there picking something out for her! We all had so much fun in there with her. She played with the stuffed animals, scooted around on a tricycle, read some books, played on a kitchen, and found a bouncy ball she kept kicking around while we waited for Opa to check out. Overall, it was a GREAT day!!! God is so good and we just continue to be amazed at the miraculous work he does in Seiden's life!!!
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